Prader-Willi syndrome (PWS) is a complex condition which has a variety of symptoms including a constant desire to eat, low muscle tone and incomplete sexual development. The Prader – Willi Syndrome Association UK (PWSA) have organised Prader-Willi Syndrome Awareness Week where a variety of events and fundraising activities will be happening throughout the week.
New Directions, who were acquired by the Priory Group in February 2014, are a specialist provider of residential and supported living options for those with PWS and will be fundraising and spreading the word of this rare syndrome. Staff and friends of New Directions pulled together over the May Day bank holiday weekend to partake in a ‘Pier to Pier Challenge’; a return journey from Hastings Pier to Eastbourne Pier which is a total distance of over 36 miles. Together the team has raised £2000 for the PWSA and there is more to come.
Additionally, New Directions have designated Friday 23rd of May as a day to celebrate the great work that the PWSA do, by wearing either the Association’s branded T-shirts or something blue, which is the brand colour selected by the PWSA UK. During Friday Nina Holyer, New Directions Staff Development Manager, will be presenting their fundraising money raised from the ‘Pier to Pier Challenge’ by chequeto Jane Hicks, Trustee Board member of the PWSA.Brooke House, a care home in Freemantle, Southampton, for adults with autism and other learning disorders, has been praised by care inspectors for its ‘good’ quality of care across the board.
The care inspectorate said the service was ‘safe’, ‘effective’, ‘caring’, ‘responsive’ and ‘well-led’.
Residents were supported to take part in a range of activities such as drama, football, swimming and cycling.
A recent holiday had also been arranged in Weymouth at a caravan park, and residents had told the care home manager they would like to go to Spain next time ‘so the care home is in the process of sorting out people’s passports’.
Care Quality Commission (CQC) inspectors, said: “People felt safe living at Brooke House and people were very much at the heart of the service. Staff sought consent from people before providing care or support, and decisions were taken in the best interests of people.
“People were treated with kindness, compassion and respect, and staff promoted people’s independence and right to privacy.
“Staff knew what was important to people and encouraged them to be as independent as possible.”
Brooke House is located in Millbrook Road East and is run by Priory Adult Care (formerly Creagmoor), part of the Priory Group.
The CQC report states: “A staff member told us that when they were interviewed, people living at the home were involved in the process. The staff could then check if the applicant was suitable to work with the people they were supporting. A staff member said, ‘When I had my interview, I had a person living at the home in my interview with me asking me questions and it was amazing, and I really enjoyed it’.”
Inspectors added that people were cared for with kindness and compassion.
“One person said, ‘I like the staff here, they are very friendly.’ Another person said, ‘All of the staff are very nice people.’ A family member told us, ‘All the staff are good, very caring and dedicated.’ Inspectors added that staff had built up positive relationships with people.
The CQC said: “Staff spoke about their work with passion and spoke about people warmly. People living at the home liked to get involved in charity events and fundraising and really enjoyed discussing ideas and putting them into practice.”
Staff had also been very proactive in ensuring that a suitable church was found for a resident who was keen to practise their faith, and took the resident there each week.
For more information on the specialist services Priory Adult Care can offer, please call the enquiries and referrals team on 0808 208 2147 or click here to make an enquiry.